Hope found Mon's nunchuks (foam covered) from way back when, which were previously found by Shane and left strewn about. See the album for all her fun
Hope Eloise
A family shot in front of the Giant Heart at the Franklin Institute. Seems appropriate.
Sunday, April 27, 2008
Ninja Girl
Hope found Mon's nunchuks (foam covered) from way back when, which were previously found by Shane and left strewn about. See the album for all her fun
Wednesday, April 23, 2008
Growing
Hope has four teeth now. Two up and two beneath. (Can you name the band?) She is also saying some "words"; Mama, Dada, down (deh-deh-deh), bottle (ba-bul), ball (ba ba ba). She sometimes calls Shane (Say) and Olivia (dih-dee-uh or lil-lee-uh).
Saturday, April 19, 2008
Sorry To Keep You Hanging
Hope's sedated echo looked good. Heart function and size were totally normal. We also just got back the results from the development psychologist who tested her as part of the feeding study -- again, totally normal.
Thanks for caring!
Thanks for caring!
Friday, April 11, 2008
Back at CHOP
Today we are back at CHOP -- don't worry -- for a sedated echocardiogram (ultrasound of the heart). Part of normal care for TGA kids at one year old. Hope's cardiologist has been performing non-sedated echos in a satellite office about every two months, but as she becomes more active it becomes harder and harder to get good pictures of her little heart. As we sit here in the waiting room, it just feels natural to write. It totally brings me back to our experience just over a year ago. I even ran into another family who was here at the same time that we were. Small world.
Yesterday, we had a speech therapist out to the house to evaluate Hope's speech and cognitive development. Hope was awesome. That's not just me talking either. I know I'm more than a little biased, but both the speech therapist and the developmental psychologist -- who saw her on Wednesday as part of the feeding study -- were really impressed with her and her abilities. It's easy, especially in these really busy weeks to get into a funk and to forget how truly blessed we are -- knock on wood, for as I type this I'm afraid I'll jinx her echo results. But every day with her and our other children is such a blessing.
Now, if I can just enlighten the boy to this same way of thinking. Blessings!
Yesterday, we had a speech therapist out to the house to evaluate Hope's speech and cognitive development. Hope was awesome. That's not just me talking either. I know I'm more than a little biased, but both the speech therapist and the developmental psychologist -- who saw her on Wednesday as part of the feeding study -- were really impressed with her and her abilities. It's easy, especially in these really busy weeks to get into a funk and to forget how truly blessed we are -- knock on wood, for as I type this I'm afraid I'll jinx her echo results. But every day with her and our other children is such a blessing.
Now, if I can just enlighten the boy to this same way of thinking. Blessings!
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