Hope seems much more comfortable today on the vent. She has opened her eyes several times and looks like she's really trying to make a connection with us. I think if she could talk she would tell us that she is working as hard as she can. Today, another kid on the floor coded and it just reminds you how very tenuous life is, especially for these littlest of cardiac patients.
Later today, they will remove the arterial line (a line that can provide meds to and measure pressures at the heart). To make up for the lost flow capacity, they have placed an IV in her foot to complement the one in her hand. Further, they have removed her Salem Sump -- a suction line that helps pull the acids out of her stomach -- and have placed an NG, or feeding tube. After yet another X-Ray to confirm its proper placement, they will start introducing breast milk through this tube.
Last night, we read Beatrix Potter's Peter Rabbit. Today, The Tailor of Gloucester. I think she's really developing an appreciation for literature.
Thanks again for all your prayers and offers to help!
Hope Eloise
A family shot in front of the Giant Heart at the Franklin Institute. Seems appropriate.
2 comments:
We sure appreciate your updates on precious Hope. The setbacks she's experiencing aren't unusual as I'm sure you're being told......just disappointing. We are praying in California for you all.
Please take care of yourselves...food and rest!
Rosemary and David
Rosemary,
You are right -- the doctors and nurses have been telling us that this is not unusual. It's reassuring to hear from an impartial third party that this is the case. Thanks!
It also helps that she's looking great today!
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