Also, we feel so fortunate to have the support, thoughts and prayers of so many great friends and family members. Thanks!
"Although this has been a major ordeal for us and for Hope, we feel so totally blessed. We have met so many families here whose diagnosis is so much more dire. Typically, Hope's defect is very repairable with only the one surgery. Many of the defects that others are dealing with require three surgeries over two years. More tragically, one of the families that we became friendly with here actually lost their son after almost a month on bypass. So, while I never thought I'd say this when we first got this diagnosis, we really do feel very lucky. "
Hope Eloise
A family shot in front of the Giant Heart at the Franklin Institute. Seems appropriate.
Wednesday, March 28, 2007
3/28 Update: Delay
One of the CT surgeons just looked at Hope's incision, and has prescribed an antibiotic just to be safe. However, this kind of knocks her out of the "infection free" status that she needs to maintain for discharge. Maybe I jinxed it after all. I see us being here through the weekend. Still, we remind ourselves to keep perspective; others have been and will be here much longer, and still may not have a good outcome. The following is an excerpt from an email I sent to one of my good high school friends:
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3 comments:
Kevin, neither you or Monica are jinxing anything. You are giving Hope nothing but good vibes and she is feeling it and loving you both for it. Keep up the good work. That little girl will be coming home soon. She is in good hands with the hospital staff as well as yourselves. So, hang on and remember that God is there with you as well.
Love, peace and joy,
Mom
Ok, Kevin, I think you are getting ready for medical school!!! You really report beautifully about precious Hope's progress and I feel like I'm right there! It's not too late to become a doctor! She's doing great and will be home very soon. Then the fun begins!!!
I admire you and Monica so much. You're wonderful parents and have really kept it together.......with help from Nona, of course!
California is still praying.
Rosemary
My mom has been a huge help! I don't know how we'd have managed through this without her help. I guess I like to think we'd have muddled through, but not nearly so beautifully. Her relationship with the kids is an awesome and beautiful thing to behold.
You don't think it's too late for med school, eh? ;^)
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